Tardive dyskinesia (TD): Uncontrollable body movements

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What are the signs and symptoms of TD?

While it can occur anywhere in the body, mild, moderate, or severe TD movements are often seen in the:

  • Lips
  • Tongue
  • Jaw
  • Eyes

TD can also affect the:

  • Upper body
  • Arms/Hands
  • Torso
  • Legs/Feet

TD can result from taking certain mental health medicines (like antipsychotics) for a while.

Have you experienced any of the following movements in your body?

Upper limbs: asymmetrical movements, swaying, 'piano fingers', grabbing of clothing

Twisting or dancing fingers and toes

Tongue: “bonbon” sign, protrusion, darting

Tongue darting or protrusion

Lips: smacking, puckering, pursing

Lip smacking, puckering, or pursing

Torso: hyperextension, shifting, rocking

Upper body rocking, jerking, or thrusting

Jaw: biting, clenching, lateral movements, chewing

Jaw sawing or chewing

Eyes: excessive blinking and squinting

Excessive blinking

Not actual patients

What medicines can cause TD?

You may have been prescribed certain mental health medicines (like antipsychotics) to treat one of these conditions:

Depression

Bipolar disorder

Schizoaffective disorder

Anxiety disorder

TD can be caused by certain prescription medications used to treat mental health or gastrointestinal conditions.

If you are currently taking antipsychotic medicine, do not stop, adjust, or switch your medicine without talking to your healthcare provider. Continue taking your medicine as prescribed and be sure to talk to your healthcare provider about TD and FDA-approved treatments, like INGREZZA® (valbenazine) capsules.

TD affects everyone differently.

TD symptoms can be mild, moderate, or severe. If you suspect you have TD, your healthcare provider will perform several examinations. Common areas of the body where they will look for TD symptoms are your face, torso, arms, and legs. TD symptoms, especially in your feet and toes, are sometimes overlooked.

Not an
actual patient

The impact of TD goes beyond physical ability.

Based on a survey, people reported TD can impact them emotionally or socially.

Emotional impact

TD can change the way people think and feel about themselves. Many people with TD reported feelings of anxiety, frustration, and low self-esteem.

Results based on a survey of 397 people, of which 173 diagnosed with TD were asked, "Tardive dyskinesia may impact you in many different ways. To what extent has tardive dyskinesia impacted you in each of the following areas?" Answers ranged on a scale of 1 (not impacted at all) to 7 (extremely impacted).

People with uncontrollable body movements from TD reported an impact on their social life and behaviors. For example, doing things in public, their relationships with others, and participating in social events were affected by uncontrollable body movements from TD.

Results based on a survey of 397 people, of which 173 diagnosed with TD were asked, "Since first experiencing involuntary movements, how has your ability to perform the following daily activities been affected, if at all?" Answers ranged on a scale of 1 (not affected at all) to 5 (extremely negatively affected).

Is TD impacting your life emotionally or socially? Talk to your healthcare provider and be open about how you're feeling and how these feelings are affecting your personal life and relationships.

Caring for someone with TD.

If you're the care partner of someone with uncontrollable body movements from TD, it's helpful to remember that your loved one:

  • May not be aware if their uncontrollable movements are TD
  • Might not want to seek help because they don't understand what's happening with their body

Start a discussion—encourage your loved one to talk to their healthcare provider about TD, and if possible, join them for the appointment. You may be able to help them better understand and remember their healthcare provider's advice and instructions.

Helpful tip: Record your loved one's uncontrollable body movements so they can share them with their healthcare provider during an in-office or telehealth appointment.

Not an
actual patient

"Because of my uncontrollable body movements I was extremely self-conscious, embarrassed, and withdrawn. I had a very active lifestyle before these movements."

Individual results may vary

— Moira, living with depression and tardive dyskinesia

Moira was compensated by Neurocrine Biosciences, Inc. to share her story

Doctor Discussion Guide

Ready to talk to your healthcare provider about your TD movements? Our discussion guide can help.

Fill out our Doctor Discussion Guide questionnaire and bring it to your next appointment to help you and your healthcare provider have a better conversation about TD and INGREZZA.

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Ready to talk about tardive dyskinesia (TD) treatment? Find a specialist.

Whether your uncontrollable body movements are mild, moderate, or severe, connecting with a psychiatry or neurology healthcare provider who may be able to help you diagnose and treat TD is important.

Enter your ZIP code to find a specialist near you and ask about INGREZZA.a

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  • Neurocrine Biosciences, Inc. is providing this service to help patients find healthcare professionals in their area who have experience with tardive dyskinesia (TD).

No fees have been received by or paid to healthcare professionals for inclusion in this locator directory. Inclusion of a healthcare professional in this directory does not represent an endorsement by or a recommendation from Neurocrine Biosciences, nor does it imply that the healthcare professional on the list will determine that a Neurocrine Biosciences product is right for you. Neurocrine Biosciences makes no warranty as to the credentials, skill, or outcomes of the listed professional.

Information posted to this site is provided for educational and informational purposes only. You are ultimately responsible for the selection of a healthcare professional and it is an important decision that you should consider carefully. This healthcare professional locator tool is just one source of information available to you.

Indication and Important Safety Information

Do not take INGREZZA if you are allergic to valbenazine, or any of the ingredients in INGREZZA.

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Important Information

Approved Use

INGREZZA® (valbenazine) capsules is a prescription medicine used to treat adults with movements in the face, tongue, or other body parts that cannot be controlled (tardive dyskinesia).

It is not known if INGREZZA is safe and effective in children.

IMPORTANT SAFETY INFORMATION

Do not take INGREZZA if you:

  • are allergic to valbenazine, or any of the ingredients in INGREZZA.

INGREZZA may cause serious side effects, including:

  • Sleepiness (somnolence). Do not drive, operate heavy machinery, or do other dangerous activities until you know how INGREZZA affects you.
  • Heart rhythm problems (QT prolongation). INGREZZA may cause a heart problem known as QT prolongation.
  • Symptoms of QT prolongation may include:
    • fast, slow, or irregular heartbeat
    • shortness of breath
    • dizziness or fainting
  • Tell your healthcare provider right away if you have a change in your heartbeat (a fast or irregular heartbeat), or if you faint.
  • Abnormal movements (Parkinson-like). Symptoms include: shaking, body stiffness, trouble moving or walking, or keeping your balance.

Before taking INGREZZA, tell your healthcare provider about all of your medical conditions including if you: have liver or heart problems, are pregnant or plan to become pregnant, or are breastfeeding or plan to breastfeed.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

The most common side effect of INGREZZA is sleepiness (somnolence). Other side effects include changes in balance (balance problems, dizziness) or an increased risk of falls, headache, feelings of restlessness, dry mouth, constipation, and blurred vision.

These are not all of the possible side effects of INGREZZA. Call your doctor for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit MedWatch at www.fda.gov/medwatch or call 1-800-FDA-1088.

Please see accompanying INGREZZA full Product Information

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